Am I eligible to participate in Partners for Discovery for Total Cancer Care at UVA?
We encourage participation from adults who are:
- Diagnosed with cancer
- Being evalulated for cancer
- At risk for cancer.
What will I be asked to do?
- Review and sign a consent form to enter the research study.
- Donate four teaspoons of blood during a routine blood draw, which can be drawn as needed for research projects not to exceed twelve teaspoons in an eight-week period.
- If you are having surgery, allow any leftover tissue not needed for diagnosis to be put in a tissue bank for future research. No additional surgery will be performed, nor will extra tissue be taken for this purpose. Only tissue that would otherwise be discarded will be banked.
- Donate a cheek cell sample as needed for research projects, not more than two times per year.
- Allow us to obtain information from your medical records about your disease, risk factors and treatment.
- Allow us to contact you if we find additional studies that might be suited to you.
Why do I have to sign a consent form?
Participation in Partners in Discovery for Total Cancer Care at UVA is voluntary. If you choose to participate, a research coordinator will review a consent document with you, answer any of your questions about the program and then ask you to sign the consent form. This formal process exists so that you understand what we are doing with your samples and so that you understand your rights as a participant in this program. If you decide after signing the consent form that you no longer wish to participate, you may withdraw at any time. While we hope to enroll as many patients as we can, your care at UVA will not be affected in any way whatsoever if you prefer not to participate in Partners in Discovery for Total Cancer Care at UVA.
What will happen with my samples and medical information?
Your samples and medical information may be used by researchers at UVA, other research institutions or commercial companies for studies aimed at understanding genetic and other molecular changes that occur in cancer and related diseases. This may include analysis of DNA (genes) in your samples.
Will people know that the specimens and medical information belong to me?
The University of Virginia is committed to protecting your privacy. There are multiple layers of protection in place to safeguard the privacy of all our patients. When you donate your specimens to Partners in Discovery, your specimens and medical information are assigned a unique code so that you cannot be identified without a key. While we believe the risk of privacy loss to you is minimal, there are also various federal and state laws in place to protect you and your medical information.